Myasthenia Gravis Learning Zone
Transcript: Living with MG: At work and at home
Dr Renato Mantegazza and Domenico Montalto
Interview recorded Apr 2024. All transcripts are created from interview footage and directly reflect the content of the interview at the time. The content is that of the speaker and is not adjusted by Medthority.
I mean, you were mentioning before that you are a teacher, so most of your work is through your voice and the interaction with the younger people. How the myasthenia gravis affect your daily life, basically, from this point of view. Actually, at the beginning, at first, it didn't bother me too much, but nowadays, the situation is quite different. Yes, I am a teacher. I teach French. I use my voice. Before, I used to teach also in evening classes, I cannot do anymore it. I will get tired, but before I could much, but not anymore now.
Even when I teach during the day, you said my voice, yes, I used to scramble over the words so that it can be so frustrating. Also, I used to the board. I have to rest my arms because of myasthenia. It's so frustrating. I am just 33 years old. So young but I feel so old in my bodies. And for my daily life, I cannot dry my sons hair without needing a rest. I cannot running after my children like I wanted to do. Is the disease impacting on your social lives?
So how do your friends behave with you, respect to, you know, your possibilities to do things, go out, walking, restaurants and whatever? I have a family. I don't go out like before I did, so I used to do, but even organising maybe, for example, going at the restaurant, I need to rest a little bit before to go the restaurants or I have to go earlier at the than before. So if I want to go to eat a pizza with my family, I need to rest before. Okay. So this is a big change. So you have to plan all the activities, you know, thinking what you are going to face.
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