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Psoriasis Academy

Patient-centred care in psoriasis

Read time: 80 mins
Last updated:6th Aug 2023
Published:6th Aug 2023

Importance of people-centred care in psoriasis

The World Health Organization encourages a people-centred approach to care of people with chronic and complex conditions, including psoriasis1.

A people-centred approach involves providing healthcare and services in a way that responds to their preferences, are coordinated to their needs, and are safe, effective, timely, efficient and of acceptable quality1

Shifting to a people-centred approach may help to optimise treatment of psoriasis and management of comorbidities1. Use of a people-centred approach for management of psoriasis should start with assessing and considering the full spectrum of the person's needs, including psoriasis-related issues, and other issues concerning their health and wellbeing1.

  • Patients should be listened to and heard, and given the time and space needed to voice their concerns and opinions2
  • Patients should be given the opportunity to play an active role in decisions about their management, and be actively encouraged to engage in all aspects of their care2

Treatment goals based on patient perspectives and expectations

Accurate information about a patient’s needs can assist with selecting a treatment approach that best fits the profile of that patient, enabling a more personalised approach to treatment3

A cross-sectional survey of 1,200 people with psoriasis explored treatment goals that are important to patients, using the Patient Needs Questionnaire (PNQ) of Patient Benefit Index (PBI). Results of this study indicated the top five treatment goals in the overall study population were to3:

  • have confidence in the therapy
  • regain control of the disease
  • have no fear that the disease will become worse
  • get better skin quickly
  • be free of itching

Results also indicated treatment preferences varied according to patient characteristics such as age, severity and gender3. In the higher severity subgroup, one of the top five goals was ‘‘to find a clear diagnosis and therapy’’, whereas ‘‘to get better skin quickly’’ was included in the top 5 goals of the lower severity subgroup3.

The authors proposed that further exploration of these data may help to inform treatment decisions and optimise patient outcomes3.

'Are you really listening to your psoriasis patient?' EADV 2022 symposium

Join the Chair, Professor Matthias Augustin, in this unmissable hybrid symposium at EADV 2022 on the importance of patient-centred care in psoriasis. As part of this exciting agenda, live patient–doctor consultations are used to demonstrate the power of communication with patients, alongside sessions from Dr Rachel Sommer and Professor Antonio Costanzo. 

This content, created in collaboration with the expert faculty and intended for healthcare professionals only, is from the symposium ‘Are you really listening to your psoriasis patient?’, presented at the EADV Congress 2022

Watch the full symposium ‘Are you really listening to your psoriasis patient?’ above, for expert insights into the optimisation of topical treatment in people living with psoriasis. This symposium was a live educational event and was accredited on demand after the event for three months. This accreditation has now expired. 

People living with psoriasis face significant barriers to optimal management despite effective therapeutic options and clear diagnostic and treatment algorithms for psoriasis. Our expert faculty highlights the importance of people-centred care in psoriasis, the real-world evidence that integrates measures for patient wellbeing, and how patient involvement in care can impact psoriasis treatment outcomes. 

Watch the live patient–doctor consultations, which highlight how small changes to current clinical practice can impact the outcome for people living with psoriasis, and listen to the Q&A, during which the experts address questions submitted by attendees.

Learn more about the psoriasis experts featured throughout the Psoriasis Academy

The importance of shared decision-making in psoriasis

Listen to Dr Sommer and patient advocate Joel Nelson describing the relevance of involving psoriasis patients in the management of their disease, to improve outcomes and patient wellbeing, from both  expert and patient perspectives.

Shared decision making: the importance of implementing theory into practice
How happy were you to actually find a treatment that you felt you had long-term control with?
The patient perspective high on the agenda at EADV 2022

You can also download a copy of the summary infographic, ‘Do’s and Don'ts of shared decision-making in psoriasis – supporting patient wellbeing’, based on Dr Sommer’s talk at EADV 2022.


685_EADV_Infographic_Sep2022.png

Download an infographic based on Dr Sommer’s talk, ‘Do’s and Don’ts of shared decision-making in psoriasis – supporting patient wellbeing’.

References

  1. World Health Organization. Global report on psoriasis. 2016.
  2. Koren J, Lambert JLW, Thomsen SF, McAteer H, Fabbrocini G, Corazza V, et al. Elevating the Standard of Care for Patients with Psoriasis: ‘Calls to Action’ from Epicensus, a Multistakeholder Pan-European Initiative. Dermatol Ther (Heidelb). 2023;13(1):245–268.
  3. Armstrong A, Edson-Heredia E, Zhu B, Burge R, Bell S, Crowley JJ, et al. Treatment goals for psoriasis as measured by patient benefit index: Results of a National Psoriasis Foundation survey. Adv Ther. 2022;39(6):2657–2667
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