Lifelong care for NF1: Applying new evidence within regional care models
Podcast 3: Lifelong care for NF1: Applying new evidence within regional care models and support structures
Episode 3. Ignacio Blanco joins Eric Legius to discuss how evolving NF1 evidence can be applied across lifelong care. Focusing on the shift from reactive to proactive management, they highlight how innovations such as MEK inhibitors, whole‑body MRI, and improved risk stratification are reshaping surveillance and treatment decisions. They also cover the role of multidisciplinary coordination, standardized procedures, and national and international reference networks in delivering more consistent, patient‑centered care. View transcript.
Development of this education content has been supported by a grant/funding from SpringWorks. The content has been independently developed by EPG Health with no input or influence from SpringWorks.
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