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Guideline

End of life care for infants, children and young people with life-limiting conditions: planning and management

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Last updated:29th Aug 2019

This guideline covers the planning and management of end of life and palliative care in for infants, children and young people (aged 0–17 years) with life-limiting conditions. It aims to involve children, young people and their families in decisions about their care, and improve the support that is available to them throughout their lives.

The guideline does not cover children and young people without a life-limiting condition who die unexpectedly (for example, accidental death).

MHRA advice on gabapentin: In July 2019 we updated a footnote to this guideline to reflect a change in the law relating to gabapentin. As of 1 April 2019, because of a risk of abuse and dependence gabapentin is controlled under the Misuse of Drugs Act 1971 as a class C substance and is scheduled under the Misuse of Drugs Regulations 2001 as schedule 3.

 

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