LOPD symposium
Late-onset Pompe disease: Elevating care through patient insights
Hear new survey data from patients with late-onset Pompe disease (LOPD) on overlooked symptoms and unmet needs in this accredited symposium, which was held at WORLDSymposium 2025.
Watch Professor Benedikt Schoser, Dr. Priya Sunil Kishnani, and Dr. Tahseen Mozaffar discuss the lessons learned from patients, and how their insights can and do have a significant impact on disease management.
Hear about:
- The large impact of patient insights on clinical practice and contemporary LOPD research
- The significant burden delayed diagnosis confers on people living with LOPD and the role of physicians and medical professionals in mitigating it
- The multisystemic impacts of the condition and how they may be clinically managed through a multidisciplinary approach
- Novel real-world data from a survey of patients with LOPD, revealing their lived experiences with healthcare
Developed independently by EPG Health, which received educational funding from Amicus Therapeutics, Inc. awarded to EPG Health to help provide its healthcare professional members with access to the highest quality medical and scientific information, education and associated relevant content.
In support of improving patient care, this activity has been planned and implemented by Amedco LLC and MEDTHORITY. Amedco LLC is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
Amedco Joint Accreditation #4008163.
Professions in scope for this activity are listed below.
Physicians
Amedco LLC designates this enduring material for a maximum of 1.0 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.