Wearable technology and apps are rapidly becoming a part of our everyday lives. With the ubiquity of these tools, digital technologies are allowing MS patients to be monitored outside of the clinic and in their own environment for the first time. This is improving the ability to identify specific issues, predict the evolution of the disease and understand the unique features of each patient in a way that current standards of care are not able to do.
Presented by Dr Mar Tintoré, this section of the symposium answers the question: how can digital innovation improve MS patient care?
She also gives successful examples of digital technology used in other fields of medicine and metrics already measured by technology that correlate well with clinical trial measures of disability in MS, like the EDSS.
Dr Tintoré discusses how the MS PATHS project, the international effort to collect data directly from MS patients, uses a self-administered multiple sclerosis performance test (MSPT) to allow patients to collect data for a range of metrics and how this can minimise the burden on care providers.
Capturing MS symptoms from the beginning
Dr Tintoré describes how physical and cognitive changes are inadequately measured in the early phases of MS and how digital monitoring could help capture data on the progression of MS from the very beginning. She also shares how the MS PATHS project is using quantitative MRI and biobanked samples to potentially enhance their approach to disability monitoring.
Sharing two more digital technology projects, Dr Tintoré explains how the RADAR-CNS project is being used to test the utility of technology to detect mood changes and gait dysfunction in MS and how the FLOODLIGHT project was used to evaluate the feasibility of remote patient monitoring using digital technology.
Dr Tintoré describes the advantages of digital tools for monitoring MS such as the visualisation of real-world patient outcomes, improved efficiency of the Dr - patient interaction, early detection of disease changes and the empowerment of patients. She also describes the challenges being addressed along the path to adopting these tools.